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December 29, 2015

Hero Week Day 4 – Honoring Children with Spina Bifida

 

 

Some of you previously have met Ryan Noyes. Some had the pleasure to meet him today. And if not, check out this handsome young fella in pictures below. Ryan, age 4, and his dad Dave Noyes came in to speak to the 0930 class about Spina Bifida. What is Spina Bifida exactly? It is a neural tube defect that happens early in a pregnancy where the neural tube, the embryonic structure that eventually develops into the baby’s brain, spinal cord and tissue that encloses them, fails to develop or close properly. The location of the defect basically impacts all areas below it. As with many disabilities, it too has its variations, but could cause muscle weakness in the legs, seizures and orthopedic problems. Ryan walks with the assistance of canes, but has recently taken his first steps alone. He also has swung a golf club for the first time with Dad, an avid golfer. Ryan’s parents (and Ryan) see him as not having ANY limitations….challenges, yes, but no limitations. And, their live-by motto is “Never Give Up” which is printed on Ryan’s “Super Ryan” t-shirts he and Dad so proudly wear. What is really impressive, is that when given the chance to address a large 9:30 class crowd, Ryan first politely said “Good Morning”, then introduced his dad, but then went on to speak about his desire to raise money for a young girl named Emily who he would like to see have a bike (given from IM ABLE), just like his. He is 4. Quite remarkable. Truly an inspiration to us all…..

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